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Duelo anticipado en familiares de personas con demencia. Variables psicosociales asociadas y su impacto sobre la salud del cuidador: Una revisión de literatura

Publicated to:Revista Espanola de Geriatria y Gerontologia. 58 (4): 101374-0 - 2023-07-01 58(4), DOI: 10.1016/j.regg.2023.05.001

Authors: Bermejo Gómez, Isabel; Gallego-Alberto Martín, Laura; Losada Baltar, Andrés; Mérida Herrera, Laura; García Batalloso, Inés; Márquez González, María

Affiliations

Departamento de Psicología Biológica y de la Salud, Facultad de Psicología, Universidad Autónoma de Madrid, Madrid, España. - Author
Departamento de Psicología Biológica y de la Salud, Facultad de Psicología, Universidad Autónoma de Madrid, Madrid, España. Electronic address: isabel.bermejo@uam.es. - Author
Departamento de Psicología, Facultad de Ciencias de la Salud, Universidad Rey Juan Carlos, Madrid, España. - Author

Abstract

Taking care of a relative with dementia may be linked to negative consequences for the caregiver. One of the processes that can be experienced is anticipatory grief, that is defined as the feelings of pain and loss that appear in the caregiver before the death of the person cared for.The review aimed to conceptualize anticipatory grief in this population, to study the related psychosocial variables, and to know the repercussions for the health of the caregiver.A systematic search was made under the directives of PRISMA statement in the ProQuest, PubMed, Web of Science (WOS), and Scopus databases, including studies published in the last 10 years (2013-2023).A total of 160 articles were obtained, 15 being finally selected. It is observed that anticipatory grief is defined as an ambiguous process since it appeared before the death of the sick family member. Being a female caregiver, spouse of a family member with dementia, having a closer relationship with him and/or having an important responsibility in care, are associated with a greater chance of experiencing anticipatory grief. In relation to the person cared for, if he or she is in a severe phase of the disease, is younger, and/or presents problematic behaviours, there is also greater anticipatory grief in the family caregiver. Anticipatory grief has a significant impact on caregivers' physical, psychological, and social health, being associated with greater burden, depressive symptomatology, and social isolation.Anticipatory grief turns out to be a relevant concept in the context of dementia, being necessary to include it in intervention programs for this population.Copyright © 2023 SEGG. Publicado por Elsevier España, S.L.U. All rights reserved.

Keywords

Anticipatory griefCaregiversCognitive impairmentCuidador familiarDemenciaDementiaDeterioro cognitivoDuelo anticipadoFamily caregiverFemaleGriefHumansLossMalePainPérdidaSocial isolation

Quality index

Bibliometric impact. Analysis of the contribution and dissemination channel

The work has been published in the journal Revista Espanola de Geriatria y Gerontologia, Q4 Agency Scopus (SJR), its regional focus and specialization in Medicine (Miscellaneous), give it significant recognition in a specific niche of scientific knowledge at an international level.

From a relative perspective, and based on the normalized impact indicator calculated from the Field Citation Ratio (FCR) of the Dimensions source, it yields a value of: 5.87, which indicates that, compared to works in the same discipline and in the same year of publication, it ranks as a work cited above average. (source consulted: Dimensions Jun 2025)

Specifically, and according to different indexing agencies, this work has accumulated citations as of 2025-06-13, the following number of citations:

  • Scopus: 7
  • Europe PMC: 4
  • Google Scholar: 3
  • OpenCitations: 3

Impact and social visibility

From the perspective of influence or social adoption, and based on metrics associated with mentions and interactions provided by agencies specializing in calculating the so-called "Alternative or Social Metrics," we can highlight as of 2025-06-13:

  • The use of this contribution in bookmarks, code forks, additions to favorite lists for recurrent reading, as well as general views, indicates that someone is using the publication as a basis for their current work. This may be a notable indicator of future more formal and academic citations. This claim is supported by the result of the "Capture" indicator, which yields a total of: 35 (PlumX).

It is essential to present evidence supporting full alignment with institutional principles and guidelines on Open Science and the Conservation and Dissemination of Intellectual Heritage. A clear example of this is:

Leadership analysis of institutional authors

There is a significant leadership presence as some of the institution’s authors appear as the first or last signer, detailed as follows: First Author (BERMEJO GOMEZ, ISABEL) and Last Author (MARQUEZ GONZALEZ, MARIA).