April 7, 2025
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Should we measure quality of life among people with HIV? A multicentre survey of physicians' opinions in Spain

Publicated to: Hiv Medicine. 26 (2): 308-318 - 2025-02-01 26(2), DOI: 10.1111/hiv.13726

Authors:

Izquierdo, Rebeca; Suarez-Garcia, Ines; Gomez-Garcia, Teresa; Marco-Sanchez, Cristina; Puente-Ferreiro, Julian; Moreno, Cristina; Diaz, Asuncion; Cabello-Clotet, Noemi; Vinuesa, David; Blanco, Jose Luis; Melus, Estrella; Gomez-Ayerbe, Cristina; Olalla, Julian; Riera, Melchor; Bernardino, Jose Ignacio; de Quiros, Juan Carlos de Lopez Bernaldo; Moreno, Santiago; Jarrin, Inma
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Affiliations

Alcala Univ, Dept Med, Madrid, Spain - Author
Carlos III Hlth Inst, CIBERINFEC, Madrid, Spain - Author
Carlos III Hlth Inst, Natl Ctr Epidemiol, Madrid, Spain - Author
Costa Sol Univ Hosp, Internal Med Dept, Marbella, Spain - Author
European Univ Madrid, Madrid, Spain - Author
Gregorio Maranon Gen Univ Hosp, Dept Infect Dis, Madrid, Spain - Author
Henares Univ Hosp, Fdn Biomed Res & Innovat FIIB HUIS HHEN, Madrid, Spain - Author
Hosp La Paz Carlos III, Hosp La Paz Inst Hlth Res IdiPAZ, Internal Med Serv, IdiPAZ Hosp La Paz Hlth Res Inst, Madrid, Spain - Author
Infanta Sofia Univ Hosp, Infanta Sofia Hosp, Dept Internal Med, Madrid, Spain - Author
San Carlos Clin Hosp, Hlth Res Inst San Carlos Clin Hosp IdISSC, Internal Med Dept, Infect Dis Unit, Madrid, Spain - Author
San Cecilio Clin Univ Hosp, Dept Infect Dis, Granada, Spain - Author
San Pedro Univ Hosp, Dept Infect Dis, Logrono, Spain - Author
Son Espases Univ Hosp, Illes Balears Hlth Res Inst IdISBa, Internal Med Dept, Infect Dis Unit, Palma De Mallorca, Spain - Author
Univ Barcelona, August Pi Sunyer Biomed Res Inst IDIBAPS, Inst Invest Biomed August Pi I Sunyer IDIBAPS, Barcelona 08036, Spain - Author
Univ Complutense Madrid, Madrid, Spain - Author
Univ Hosp Ramon & Cajal, Ramon & Cajal Hlth Res Inst IRYCIS, Dept Infect Dis, Madrid, Spain - Author
Virgen Victoria Univ Hosp, Malaga Biomed Res Inst & Nanomed Platform IBIMA Pl, Infect Dis Unit, Malaga, Spain - Author
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Abstract

ObjectivesWe assessed the opinions of physicians caring for people with HIV (PWH) from the multicentre Spanish CoRIS cohort regarding the assessment of health-related quality of life (HRQoL).MethodsWe designed an online self-administered questionnaire comprising 27 structured questions across four domains: (i) sociodemographic and clinical data; (ii) usefulness of measuring HRQoL; (iii) information, training and resource needed; and (iv) whether and how HRQoL should be measured. Physicians completed the questionnaire between April and June 2023.ResultsOf 131 physicians surveyed [53.8% men, median age 52 years (interquartile range: 42-60)], 90.9% and 88.6% agreed that measuring HRQoL is useful for both PWH and medical decision-making, respectively. However, 67.2% needed training on what HRQoL is and how to measure it, 79.4% required information on validated tools, and 80.9% felt that clinical guidelines are needed. Overall, 90.1% of physicians agreed that HRQoL should be measured among PWH. Most physicians (82.8%) supported using specific scales for PWH, with 74.1% recommending annual measurement, 49.1% suggesting that nurses from HIV units conduct the assessments, and 43.1% favouring personal interviews during medical visits. At the time of the survey, 55.3% of physicians did not measure HRQoL in any patients due to time or resource constraints (75.8%).ConclusionsDespite the recognized importance of HRQoL measurement in PWH, Spanish physicians encounter barriers such as time constraints and limited resources. Developing clear guidelines, using tailored scales, and integrating digital tools along with multidisciplinary support could enhance routine HRQoL assessments and improve patient-centred care.
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Keywords

AdultAttitude of health personnelFemaleHealth professional attitudesHivHiv infectionsHumansMaleMiddle agedPatient-reported outcome measuresPatient‐reported outcome measuresPhysiciansQuality of lifeQuality of life (hrqol)SpaiSpainSurveys and questionnaires

Quality index

Bibliometric impact. Analysis of the contribution and dissemination channel

The work has been published in the journal HIV MEDICINE due to its progression and the good impact it has achieved in recent years, according to the agency Scopus (SJR), it has become a reference in its field. In the year of publication of the work, 2025, it was in position , thus managing to position itself as a Q1 (Primer Cuartil), in the category Health Policy.

Independientemente del impacto esperado determinado por el canal de difusión, es importante destacar el impacto real observado de la propia aportación.

Según las diferentes agencias de indexación, el número de citas acumuladas por esta publicación hasta la fecha 2026-04-05:

  • Europe PMC: 1
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Impact and social visibility

From the perspective of influence or social adoption, and based on metrics associated with mentions and interactions provided by agencies specializing in calculating the so-called "Alternative or Social Metrics," we can highlight as of 2026-04-05:

  • The use, from an academic perspective evidenced by the Altmetric agency indicator referring to aggregations made by the personal bibliographic manager Mendeley, gives us a total of: 7.
  • The use of this contribution in bookmarks, code forks, additions to favorite lists for recurrent reading, as well as general views, indicates that someone is using the publication as a basis for their current work. This may be a notable indicator of future more formal and academic citations. This claim is supported by the result of the "Capture" indicator, which yields a total of: 7 (PlumX).

With a more dissemination-oriented intent and targeting more general audiences, we can observe other more global scores such as:

  • The Total Score from Altmetric: 8.
  • The number of mentions on the social network Facebook: 1 (Altmetric).
  • The number of mentions on the social network X (formerly Twitter): 1 (Altmetric).

It is essential to present evidence supporting full alignment with institutional principles and guidelines on Open Science and the Conservation and Dissemination of Intellectual Heritage. A clear example of this is:

  • The work has been submitted to a journal whose editorial policy allows open Open Access publication.
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Leadership analysis of institutional authors

This work has been carried out with international collaboration, specifically with researchers from: Granada.

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Awards linked to the item

This study would not have been possible without the collaboration of all patients, medical and nursing staff, and data managers who participated in the project. Centres and investigators involved in Coris cohort are listed below.
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