{rfName}
Li

Indexed in

License and use

Icono OpenAccess

Citations

1

Altmetrics

Analysis of institutional authors

Arredondo-González C.p.Author

Share

Publications
>
Article

Living normally without being oneself: A qualitative study on the experience of living with advanced chronic kidney disease

Publicated to:PLoS ONE. 18 (12 December): e0295506-e0295506 - 2023-12-01 18(12 December), DOI: 10.1371/journal.pone.0295506

Authors: de la Cuesta-Benjumea C; Hernádez-Ibarra LE; Arredondo-González CP

Affiliations

Abstract

The aim of the study was to describe and analyze the experience of people with advanced chronic kidney disease. Chronic kidney disease is a growing public health problem that is on the increase worldwideThe experience of living with this illness is paradoxical, as it can include feelings of dependent autonomy, distant connection, abnormal normalcy, and uncertain hope. Every chronic disease involves a biographical alteration from the onset. For those who suffer it, it implies a breaking down and reconstruction of their everyday life. Despite the prevalence of the disease and the increase in the number of qualitative research studies in recent decades, there has not been much research on the experience of people with Chronic kidney disease. This is a qualitative study that began in 2018 and concluded in 2021.Twenty-one people with advanced chronic kidney disease were interviewed. They participated voluntarily with informed consent Participants were selected by purposive sampling. Data analysis was guided by grounded theory procedures using the Nvivo 12 software. This study reveals that people with advanced chronic kidney disease do not feel the same as they used to because their control over their lives is limited; because they feel their health is in a continuous state of deterioration; and because of the changes in themselves and in their relationships with others. With chronic kidney disease, their identity is continually called into question. The normal lives of these people–their biographical constructions–are precarious and are continuously being remodelled by the effects of treatment and the inexorable course of this disease. This study contributes to an understanding of the experience of people with advanced chronic kidney disease. It can contribute to helping health care professionals effectively support these patients in their efforts to lead a normal life and in making decisions about their treatment.

Keywords

Administração pública e de empresas, ciências contábeis e turismoAdministração, ciências contábeis e turismoAgricultural and biological sciences (miscellaneous)AnthropologyAntropologia / arqueologiaArchaeologyArquitetura, urbanismo e designAstronomia / físicaBiochemistry, genetics and molecular biology (miscellaneous)BiodiversidadeBiologyBiotecnologíaCiência da computaçãoCiência de alimentosCiência política e relações internacionaisCiências agrárias iCiências ambientaisCiências biológicas iCiências biológicas iiCiências biológicas iiiCiências sociais aplicadas iComunicação e informaçãoDemographyDireitoEconomiaEducaçãoEducação físicaEnfermagemEngenharias iEngenharias iiEngenharias iiiEngenharias ivEnsinoEnvironmental studiesFarmaciaGeneral agricultural and biological sciencesGeneral biochemistry,genetics and molecular biologyGeneral medicineGeociênciasGeografíaHistoriaHistory & philosophy of scienceHuman geography and urban studiesInterdisciplinarInterdisciplinary research in the social sciencesLetras / linguísticaLinguística e literaturaMatemática / probabilidade e estatísticaMateriaisMedicina iMedicina iiMedicina iiiMedicina veterinariaMedicine (miscellaneous)MultidisciplinaryMultidisciplinary sciencesNutriçãoOdontologíaPlanejamento urbano e regional / demografiaPsicologíaPsychologyQuímicaSaúde coletivaServiço socialSociologíaSociologyZootecnia / recursos pesqueiros

Quality index

Bibliometric impact. Analysis of the contribution and dissemination channel

The work has been published in the journal PLoS ONE due to its progression and the good impact it has achieved in recent years, according to the agency WoS (JCR), it has become a reference in its field. In the year of publication of the work, 2023, it was in position 32/134, thus managing to position itself as a Q1 (Primer Cuartil), in the category Multidisciplinary Sciences.

Independientemente del impacto esperado determinado por el canal de difusión, es importante destacar el impacto real observado de la propia aportación.

Según las diferentes agencias de indexación, el número de citas acumuladas por esta publicación hasta la fecha 2025-06-08:

  • Open Alex: 1
  • Scopus: 1

Impact and social visibility

From the perspective of influence or social adoption, and based on metrics associated with mentions and interactions provided by agencies specializing in calculating the so-called "Alternative or Social Metrics," we can highlight as of 2025-06-08:

  • The use, from an academic perspective evidenced by the Altmetric agency indicator referring to aggregations made by the personal bibliographic manager Mendeley, gives us a total of: 15.
  • The use of this contribution in bookmarks, code forks, additions to favorite lists for recurrent reading, as well as general views, indicates that someone is using the publication as a basis for their current work. This may be a notable indicator of future more formal and academic citations. This claim is supported by the result of the "Capture" indicator, which yields a total of: 15 (PlumX).

With a more dissemination-oriented intent and targeting more general audiences, we can observe other more global scores such as:

  • The Total Score from Altmetric: 0.5.
  • The number of mentions on the social network Facebook: 1 (Altmetric).
  • The number of mentions on the social network X (formerly Twitter): 1 (Altmetric).

It is essential to present evidence supporting full alignment with institutional principles and guidelines on Open Science and the Conservation and Dissemination of Intellectual Heritage. A clear example of this is:

  • The work has been submitted to a journal whose editorial policy allows open Open Access publication.

Leadership analysis of institutional authors

This work has been carried out with international collaboration, specifically with researchers from: Mexico.

There is a significant leadership presence as some of the institution’s authors appear as the first or last signer, detailed as follows: Last Author (ARREDONDO GONZALEZ, CLAUDIA PATRICIA).

the author responsible for correspondence tasks has been Hernádez-Ibarra L.E..