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Funded by the Foundation for Biosanitary Research and Innovation in Primary Care (FIIBAP) and the Autonomous Community of Madrid Regional Ministry of Health through non-refundable grants from the credits awarded to the Madrid region by the Spanish Government'sCOVID-19 Fund, included in Order HAC/667/2020 and co-funded by the healthstartPlus programme of the Autonomous Community of Madrid and EU (REACT-EU programme of European Regional Development Fund).

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Article

Family Caregivers' Experiences during the COVID-19 Pandemic: Qualitative Study

Publicated to:Healthcare (Basel). 12 (10): 970- - 2024-05-01 12(10), DOI: 10.3390/healthcare12100970

Authors: Rico-Blazquez, Milagros; Sanchez-Ruano, Raquel; Oter-Quintana, Cristina; Polentinos-Castro, Elena; Martin-Garcia, Angel; Otones-Reyes, Pedro; Gonzalez-Beltran, Damian; Martinez-Marcos, Mercedes

Affiliations

Autonomous Univ Madrid, Fac Med, Nursing Dept, Madrid 28049, Spain - Author
IDIPHISA, Nursing & Healthcare Res Grp, Madrid 28222, Spain - Author
ISCIII, Res Network Chron, Primary Care & Hlth Promot RICAPPS RICORS, Madrid 28035, Spain - Author
Madrid Hlth Serv, Barrio Pilar Healthcare Ctr, Primary Care Assistance Management, Madrid 28029, Spain - Author
Madrid Hlth Serv, Ciudad Periodistas Healthcare Ctr, Primary Care Assistance Management, Madrid 28034, Spain - Author
Madrid Hlth Serv, Gregorio Maranon Hlth Res Inst, Madrid 28009, Spain - Author
Madrid Hlth Serv, Res Unit, Primary Care Assistance Management, Madrid 28035, Spain - Author
Madrid Hlth Serv, San Andres Healthcare Ctr, Primary Care Assistance Management, Madrid 28021, Spain - Author
Madrid Hlth Serv, San Blas Healthcare Ctr, Primary Care Assistance Management, Madrid 28980, Spain - Author
Rey Juan Carlos Univ, Doctoral Program Epidemiol & Publ Hlth Interuniv, Madrid 28922, Spain - Author
Univ Complutense Madrid, Fac Nursing Physiotherapy & Podiatry, Nursing Dept, Madrid 28040, Spain - Author
Univ Rey Juan Carlos, Hlth Sci Fac, Prevent Med & Publ Hlth Area, Madrid 28922, Spain - Author
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Abstract

Background: The COVID-19 pandemic imposed lockdown measures that affected caregiving. Understanding caregivers' context provides reveals their adaptive strategies to continue caring in this situation of uncertainty and isolation. Objective: To better understand the caregiving experiences of caregivers looking after dependent individuals living in the community during the pandemic. Design: Qualitative research, phenomenological approach. Setting: Primary healthcare centers in Madrid region (Spain). Participants: 21 family caregivers. Methods: Purposive and theoretical sampling was used to recruit caregivers across nurses from primary healthcare centers. Participants were interviewed using a semi-structured interview guide to explore the caring experience. Interview transcripts were evaluated using thematic analysis. Results: The findings were categorized into two themes: "Caregivers during lockdown-providing care in a time of adversity" and "Caregiving toward normality". The sub-themes identified were the re-structuring of before-care services and the introduction of new care approaches, managing the dependent person's health problems, looking after oneself, and dealing with adversity. To adapt to the new normal, strategies were put in place designed to recover confidence and trust, reincorporate assistance, and reconnect with others. Conclusions: Care intensified during the pandemic. Caregivers took on the task without assistance, focusing on preventing contagion and protecting themselves to be able to continue giving care.

Keywords

Coping strategiesCovid-19Family caregiversLife change eventsNursingPandemicsPerson-centered carePrimary healthcareQualitative researcQualitative research

Quality index

Bibliometric impact. Analysis of the contribution and dissemination channel

The work has been published in the journal Healthcare (Basel) due to its progression and the good impact it has achieved in recent years, according to the agency WoS (JCR), it has become a reference in its field. In the year of publication of the work, 2024 there are still no calculated indicators, but in 2023, it was in position 73/174, thus managing to position itself as a Q2 (Segundo Cuartil), in the category Health Care Sciences & Services. Notably, the journal is positioned en el Cuartil Q2 para la agencia Scopus (SJR) en la categoría Leadership and Management.

Independientemente del impacto esperado determinado por el canal de difusión, es importante destacar el impacto real observado de la propia aportación.

Según las diferentes agencias de indexación, el número de citas acumuladas por esta publicación hasta la fecha 2025-06-26:

  • Scopus: 2

Impact and social visibility

From the perspective of influence or social adoption, and based on metrics associated with mentions and interactions provided by agencies specializing in calculating the so-called "Alternative or Social Metrics," we can highlight as of 2025-06-26:

  • The use, from an academic perspective evidenced by the Altmetric agency indicator referring to aggregations made by the personal bibliographic manager Mendeley, gives us a total of: 7.
  • The use of this contribution in bookmarks, code forks, additions to favorite lists for recurrent reading, as well as general views, indicates that someone is using the publication as a basis for their current work. This may be a notable indicator of future more formal and academic citations. This claim is supported by the result of the "Capture" indicator, which yields a total of: 7 (PlumX).

With a more dissemination-oriented intent and targeting more general audiences, we can observe other more global scores such as:

  • The Total Score from Altmetric: 2.
  • The number of mentions on the social network X (formerly Twitter): 3 (Altmetric).

It is essential to present evidence supporting full alignment with institutional principles and guidelines on Open Science and the Conservation and Dissemination of Intellectual Heritage. A clear example of this is:

  • The work has been submitted to a journal whose editorial policy allows open Open Access publication.